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yip
05-05-2004, 01:18 PM
Move from A/B Recovery to Current Events

Dear fishies,

Although my name may seem unfamiliar since I rarley post, I thought that the following press release might be interesting to all of you, especially those in NY. I attended and spoke at the press conference this morning with the Senate Majority Leader Joe Bruno. SHortly thereafter, the Senate passed the bill. Now it is on to the Assembly. I will be meeting with Assembly leaders next week to hepl encourage them to pass this bill. I'm keeping my fingers crossed!!!

FOR RELEASE: Immediate, Wednesday, May ****, ****************
http://www.senate.state.ny.us

SENATE PASSES EATING DISORDER LEGISLATION
Develops Comprehensive Care Centers for Eating Disorders

The New York State Senate today passed legislation (S. ****************-A) to establish comprehensive care centers to provide individualized, comprehensive and integrated plans of care for those suffering from Anorexia Nervosa, Bulimia Nervosa and binge eating disorders.

"Eating disorders are serious health conditions that can be both physically and emotionally destructive and in most cases these diseases are potentially life threatening," said Senate Majority Leader Joseph L. Bruno (R-C, Brunswick). "The Senate has researched this issue extensively, hosting roundtables and meetings with medical professionals to examine the problem and focus on effective treatments. This legislation is critical for people with eating disorders because these conditions involve a wide range of needs and professional disciplines and a comprehensive system of care is our answer."

"Eating disorders have become an epidemic and they are creating a war within our culture and destroying the minds, bodies and hearts of young American people filled with promise and talent," said Jenny Lauren, Anorexia survivor and author. "I cannot stress how much room there is for the development of more care centers through out all the states and for much more effective treatment models so those suffering and their families can find some solace, relief and hope."

"The Senate's passage of the Comprehensive Care Centers for Eating Disorders legislation, for the first time makes available throughout the entire state, the expertise to treat those suffering from these illnesses who often face a lifetime battle," said Senator Kemp Hannon (R-C, Garden City), Chairman of the Senate Health Committee.

"The bill will facilitate more effective, comprehensive and coordinated treatment of eating disorders, and the potential for saving health care dollars and reducing pressure on health insurance costs is significant," said Senator James Seward (R-C-I, Oneonta), Chairman of the Senate Committee on Insurance. "It's important to understand that this is not a new expense for our health insurance policies; rather, it will result in more cost effective, local treatment of those with eating disorders."

Eating disorders are a growing problem in the United States, affecting between **** and ******** million individuals each year. According to the National Institute of Mental Health (NIMH), one in every ************ women suffers from anorexia and the mortality rate among people with the disease is estimated to be about ******** times higher than the average death rate due to all other causes of death for females aged ******** to ******** in the general population.

The cost of treating an individual with an eating disorder can be extraordinary. Currently, there is no generally accessible system in New York for the comprehensive and integrated treatment of eating disorder patients, nor is there a general mechanism for community education, prevention and coordinated research activities.

This legislation authorizes the State Commissioner of Health to identify "Comprehensive Care Centers (of excellence) for Eating Disorders," to treat those suffering from eating disorders. The legislation would require that the centers provide individual health and psychosocial services, inpatient medical and surgical treatment, rehabilitation and psychiatric care, residential treatment, case management, and community education including information and referral services and prevention and research activities.

Additionally, the bill requires insurers to cover treatments provided by state-identified eating disorder centers and to make flexible reimbursement arrangements between the insurer and the comprehensive care centers.

The bill also establishes a State grant program to facilitate the development and operation of comprehensive care centers which the State Commissioner of Health would issue to the centers. A special State account would be established for the funds, which any source may contribute to, and New York State's HCRA public health and mental health allocations of $**** million would be deposited into the Eating Disorder grant program account for community education, prevention and research.

"On behalf of the National Eating Disorders Association, we congratulate Senator Bruno and the Senate for their vision and leadership to help the millions suffering from eating disorders," said Lynn Grefe, CEO, National Eating Disorders Association. "This has been a 'hidden epidemic' in our state - and in the nation - and this legislation is a critical step for getting people to the care they so desperately need. Men and women, of all ages, have been suffering without having the resources or access to treatment for this lethal, yet treatable disease. This is a great day and we look forward to the passage of this important legislation that will help so many."

"As a medical doctor and as the President of the HEED Foundation, I am pleased with the Senate's passage of the Comprehensive Care Centers for Eating Disorders Legislation," said Dr. Ira M. Sacker, President/Medical Director, Helping End Eating Disorders (HEED). "I know the difficulties patients have found in the past in finding effective, insurance covered treatment. This life saving legislation will have a great impact on the accessibility and quality of treatment and give patients hope."

"Recovery from an eating disorder requires a strong collaboration between the patient and each member of the health care team," said Dr. Sharon Alger-Mayer, Albany Medical Center Clinical Nutrition Program. "Nutritional, medical and psychological needs must be identified and incorporated into a comprehensive treatment plan, and that's exactly what this legislation does. A safe, supportive environment, along with a skilled health care team, encourages trust and the confidence necessary for the patient to make the changes necessary for recovery and healing."

"Treatment of eating disorders, which encompasses psychological and physical care, continues to evolve," said Paul Macielak, President of the New York Health Plan Association. "Centers of Excellence represent the best setting for ensuring state of the art evidence-based medicine for those seeking treatment."

"These are services that we do already cover," said Dr. John Collins, Chief Medical Director, Capital District Physicians Health Plan. "Having additional availability of Centers of Excellence in New York which commit to evidence based care will be helpful."

"This is exciting news. What really makes this bill special is the fact that it is
Comprehensive," said Shelly VanSlyke, Health Educator, Skidmore College. "It is not addressing parts of this issue, but the issue as a whole, which is crucial not only to the treatment of individuals, but for information and education to their families as well. It is a giant leap in the right direction."

"This is very exciting to hear that the Senate is moving forward with this legislation because this has been a problem across the country for many years," said Robert Greenbaum, Ph.D., CEO, Four Winds Hospital in Saratoga, NY. "I would like to commend Senator Bruno for his efforts, he has consulted with me and with many other providers in order to understand and develop the best possible treatment for people suffering with eating disorders. Families that have struggled with these diseases will be happy to see that New York will now maintain a system of care because there has never been a benefit to sending patients out of state for treatment."

According to the National Mental Illness Screening Project (NMISP), while Americans spend over $******** billion on dieting and diet-related products each year, ********% of American women are still dissatisfied with their appearance and in fact, one in eight high school females have used vomiting as a "diet aid."

The bill was sent to the Assembly.


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Vicks
05-05-2004, 02:03 PM
Thank you so much for this, I am going to follow up with this story and give it to my HR person as I have been trying to get my nutritionist covered.

Vicks

PetuniaPetunia
05-05-2004, 03:49 PM
You rock!! political action fishy!! I'm going to send this to my legislators and ask them to sponsor a similar bill for the next session.

Hamsa
05-05-2004, 08:28 PM
Sounds great -
I have questions though-

Will existing treatment centers be labeled as these "Comprehensive Care Centers (of excellence) for Eating Disorders?"

How exactly will this legislation make treatment more accessable?

Will it force insurance companies to cover adequate IP/IOP stays and visits to therapists?

I'd like to know more!

yip
05-06-2004, 11:37 AM
edawg,

I'll try my best to answer your questions. From what I understand of the bill, it will seek proposals from either existing or possibly new facilities. Either way, the selected centers will have to provide a multidisciplinary and specialized treatment approach for people with eating disorders. The bill also mandates that insurance companies would have to pay for such treatment in full so long as a physician diagnosed you with a serious eating disorder. Unfortunately, this bill does not address therapist visits. We are still working on that in a separate bill here in NY that may go through this year and would ensure that all mental health treatment and not just for those with eating disorders) are covered in full like your typical medical coverage.

Hope that helps!!

Vicks
05-06-2004, 01:13 PM
serious eating disorder

I read the bill that was listed on the NY Legislative Site. There were a few questions I had. First being:

"Who will and how is someone diagnosed with a serious eating disorder?" I didn't get that message at all in any of the material I read. I read "if a doctor diagnoses, and treatment is deemed necessary - Insurance companies must provide coverage"

Second question: I was also wondering, if the entire treatment team had to be prescent physically at one specific place to be working. What I mean, is that for instance my current therapist, "Technically" works for a clinic, but he has his own office. It is like he is "affiliated" So, he sees patients the clinic refers to him, and he sees his own patients.

Keeps us updated. Is there anything that on a personal level any of us can do? If so please let me know.

While I live in NJ - I work in NY and eventually plan on moving to the Albany area, and my insurance is "Blue Cross/Blue Shield of New York"

Thanks
Vicks

yip
05-06-2004, 01:42 PM
Vicks,

First off - great that you may be moving to Albany. That is where I am. Its not a bad place to be post-college. Let me know if you need any help transitioning here. As to your questions. I don't see too much of a distinction about the diagnositic criteria we both stated. From what I understand for the Senator's office, all you need is a doctor's diagnosis and referral that inpatient care is needed. Next, I am not sure how an affiliated provider would be covered. That may be one of the issues that gets ironed out once the Department of Health begins reviewing treatment centers. If I hear anything more I'll keep you posted. Also, feel free to e-mail me with any questions you might have. ymarcian@nycap.rr.com

Millificent
05-06-2004, 02:30 PM
I just talked to the head of the Eating Disorder Coalition and mentioned this bill. The NY House is supposed to vote on it sometime next week, and there doesn't seem to be much doubt that it will pass. The EDC is hoping to promote this legislation as a model for other states to follow.

Is there anything that on a personal level any of us can do?
Ask your friends/family members to contact their respresentative and say that you hope they plan to vote for this bill! Come to think of it, I need to let my parents know about this, since they are now living in NYC.

:dragon Millie

yip
05-06-2004, 03:46 PM
This bill is definitely going to the NY version of the house - the Assembly next week. As I am supposed to meet with Assembly leadership next week to help encourage them to pass this legislation is there anything any of you fishies want me to spend time talking out? Let me know. I really want to have this legislation go through and be law. It will be an amazing step for those living in NY and suffering from an eating disorder.

Vicks
05-06-2004, 04:26 PM
referral that inpatient care is needed Ok in the interests of me watching out for me, this is what I am curious about, as now you have mentioned IP care and "Serious ED"

The question I have is this "That many people do not need to go IP nor do many people chose that route, will someone beable to get coverage if they only see someone on an "outpatient level" I have found, that often it seams "IP" is covered but it is all of the "Aftercare" stuff that falls through. After all, someone can be admitted to a "medical hospital for medical problems easier then be admited for mental problems" When a person leaves will the insurance companies have to cover "outpatient treatment" Examples: Once a week therapy, once a week nutritional counseling, once a week medical consulation, this is where I feel the system fails the most.

I currently pay out of my own pocket for my nutritionist, (I have very good medical insurance in general and that covers my therapist) I am a healthy weight, but still have difficult and strange thinking about things hence I am still in treatment. Will this bill help someone in my circumstances? If it doesn't that is ok, it is a step in the right direction, but it would be nice if it did.


Vicks

yip
05-06-2004, 06:19 PM
Vicks,

Unfortunately from what I understand, this bill will only apply to IP and perhaps IOP. It will not apply in your situation. However, there is other pending legislation here in NY that could help someone like yourself. Its called Timothy's Law. Its purpose is to require that mental health coverage be covered just as medical illnesses and problems are covered. In other words, no limits on visits and significantly less co-payments for most. This bill is currently being negotiated between the Assembly and the Senate. The Assembly is expected to act on it next week - Wed I think. Stay tuned!

Hamsa
05-07-2004, 09:40 AM
What can I do to help?

How can I get involved?

yip
05-07-2004, 11:49 AM
edawg,

If you want to help, contact your Assemblyman and let them know how important this legislation is. Also, let me know anything you would like me to convey during my meetings next week.

As for getting involved, I'll talk to Senator Bruno's office and see if they need anymore people to assist them in advocating this legislation.

Yvonne

Vicks
05-07-2004, 12:07 PM
Things to convay how about that "people with drug adictions or alcohol problems often get concrete spelled out amounts of IP medical treatment" I know my insurance plan, covers a month at least of IP treatment for people with "drug and/or Alcohol adictions" I think it is mandated.

Also, as I know it is bad to get off on to tangents, is there a way IOP can be included in this bill?

I use to live in Minnesota, and the bill that they have there is great, so hopefully this bill, will lead to even greater things. I just hope this bill doesn't lead people to think that they have to become "desperately sick to qualify" That is a fear I have, but heck anything is better than nothing!

Vicks

mytots
05-15-2004, 03:04 AM
That is great for NY, but what about other states? How can we see that insurance takes responsibility for covering adequate treatment of eating disorders? so many people seem to think this isn't really a mental illness so much as wanting to be thin, get attention or die. I am worried that none of "the powers that be" will take this seriously, esp. since i live in a state (SC) that has only two ed clinics, and are hospital based at that.